J Haem Pract 2013; 1(1):J Haem Pract 2014; 1(1): 24-27. doi: 10.17225/jhp00008

Authors: Liesbeth Schrijvers, Martin Bedford, Petra Elfvinge, Karin Andritschke, Bert Leenders, Christine Harrington

Liesbeth Schrijvers
Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands.

Martin Bedford
Canterbury Christ Church University, N Holmes Rd, Canterbury, Kent CT1 1QU, UK.

Petra Elfvinge
Coagulation Unit, Karolinska University Hospital, Solnavägen 1, 171 77 Solna, Sweden.

Karin Andritschke
University Hospital Frankfurt, Frankfurt, Germany.

Bert Leenders
University Hospital Leuven, Leuven, Belgium.

Christine Harrington
The Katharine Dormandy Haemophilia Centre & Thrombosis Unit, Royal Free London NHS Foundation Trust, London, UK.


A broad scoping exercise was undertaken to assess and quantify haemophilia nursing care in Europe.

A web-based survey in English was sent to known networks of haemophilia nurses working in Europe. This survey included questions concerning the haemophilia treatment centre, educational level, work activities, gaining knowledge/expertise and development in the future


This study was facilitated by the European Association for Haemophilia and Allied Disorders (EAHAD). The authors have no conflict of interest to declare


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The Journal of Haemophilia Practice is published by Haemnet.

Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.