J Haem Pract 2013; 1(1):J Haem Pract 2014; 1(1): 32-36. doi: 10.17225/jhp00010

Authors: Kate Khair, Colin Barker, Martin Bedford, Daksha Elliott, Christine Harrington, Kingsley Lawrence, Nicola Mackett, Debra Pollard

Kate Khair
Haemophilia Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond St, London WC1N 3JH.

Colin Barker
Animal Health Trust, Lanwades Park, Kentford, Newmarket, Suffolk UK. formerly of National Genetics Education and Development Centre, 
c/o National School of Healthcare Science 
St Chad’s House 
213 Hagley Road 
Birmingham B16 9RG.

Martin Bedford
Canterbury Christ Church University, N Holmes Rd, Canterbury, Kent CT1 1QU.

Daksha Elliott
Haemophilia Centre, Leicester Royal Infirmary, Infirmary Square, Leicester UK.

Christine Harrington
The Katharine Dormandy Haemophilia Centre & Thrombosis Unit, Royal Free London NHS Foundation Trust, London, UK.

Kingsley Lawrence
Haemophilia Centre, Addenbrookes Hospital, Cambridge University Hospitals NHS Foundation Trust, Hills Road, Cambridge UK.

Nicola Mackett
Alder Hey Children’s Hospital NHS Foundation Trust, Eaton Road, Liverpool UK..

Debra Pollard
The Katharine Dormandy Haemophilia Centre & Thrombosis Unit, Royal Free London NHS Foundation Trust, London, UK.


The role of the nurse continues to develop, probably at greater speed than ever before. Would Florence Nightingale ever have dreamt of nurses who could manage whole episodes of patient care from diagnosis, through admission, requesting investigations, prescribing treatments and evaluating outcomes? She probably did – when she instigated the first nursing outcome measures looking at infection control. Nurses can and do, do most things. What is important is that they are appropriately trained and continue to develop skills, that are relevant both to them and the patients for whom they care. Assessing this ability, or competence, requires knowledge and skills in itself. In this paper we describe the process of defining competence in haemophilia nursing. Some of these competencies are transferable from other areas of nursing, others are haemophilia-specific. Together they provide a personal development framework for nurses who work within haemophilia as part or all of their role.


The authors wish to thank all of the clinical nurse specialists who helped in the development of the HNA framework. The original work to develop the paper-based framework was sponsored by Wyeth UK, and development of the updated electronic framework was supported by Pfizer UK


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The Journal of Haemophilia Practice is published by Haemnet.

Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.