Citation
J Haem Pract 2014; 1(2):J Haem Pract 2014; 1(2): 11-14. doi: 10.17225/jhp00018

Authors: Kate Khair, Melanie Bladen, Michael Holland

Kate Khair
Consultant Nurse
Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH, UK.

Melanie Bladen
Physiotherapist
Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH, UK.

Michael Holland
Haemnet, New Penderel House, 283-288 High Holborn, London WC1V 7HP, UK.

Abstract

Self-completed measures of physical function and quality of life are increasingly being used in clinical practice yet little is known about how these measures correlate with joint scores in boys with severe haemophilia. In addition, it is not known whether currently used measures of functional outcome correlate with quality of life measures, which measure of physical function is most accurate and whether these measures are acceptable to a well treated contemporary cohort of boys.

Acknowledgements

The SO-FIT study was conceived by the authors and has been funded by a medical education grant from Pfizer, awarded under its EuroASPIRE programme.

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The Journal of Haemophilia Practice is published by Haemnet.

Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.