Citation
J Haem Pract 2014; 1(2):J Haem Pract 2014; 1(2): 15-20. doi: 10.17225/jhp00019

Authors: Elsbeth Müller-Kägi*, Manuela Albisetti, Andrea L Koppitz

Elsbeth Müller-Kägi*
Division of Haematology, University Children’s Hospital, Steinwiesstrasse 75, CH-8032 Zürich, Switzerland.

Manuela Albisetti
Division of Haematology, University Children’s Hospital, Steinwiesstrasse 75, CH-8032 Zürich, Switzerland.

Andrea L Koppitz
Zurich University of Applied Science ZHAW, Technikumstrasse 71, CH-8401 Winterthur, Switzerland.

Abstract

Adolescents experience important changes in their physical, emotional, social and behavioural development. It is known that adolescents wish to be accepted by their peers, strive for independence and are prone to experiment. The challenge for adolescents with haemophilia is the need for taking responsibility for managing their illness and learning to comply with recommended treatment. This study aimed to investigate the process of adherence to treatment in adolescents with haemophilia.

Acknowledgements

The authors state that they had no interests that might be perceived as posing a conflict or bias.
The authors wish to thank all participants, and Brigit Brand, senior physician of the Division of Haematology at the University Hospital Zurich, for supporting this study. We also thank Professor Erika Froehlicher, Professor Emeritus Department of Physiological Nursing, Department of Epidemiology & Biostatistics, Schools of Nursing and Medicine at University of California San Francisco, and Dr Markus A. Müller for their editing of the English manuscript. The first author thanks Jan Devay, MSc, PharmD, from CSL Behring, for their support with an unrestricted grant for a Master’s of Science in Nursing.
EMK performed the research. EMK and ALK designed the research study. All three authors analysed the data and wrote the paper.

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