Citation
J Haem Pract 2014; 1(3):J Haem Pract 2014; 1(3): 9-13. doi: 10.17225/jhp00029

Authors: Paul McLaughlin, Melanie Bladen, Mike Holland, Kate Khair

Paul McLaughlin
Clinical Specialist Physiotherapist in Haemophilia
Katharine Dormandy Haemophilia Centre and Thrombosis unit, Royal Free Hospital NHS Foundation Trust, Pond St, London, NW3 2QG, UK. Email: p.mclaughlin@nhs.net

Melanie Bladen
Physiotherapist
Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond St, London WC1N 3JH, UK.

Mike Holland
Director
Haemnet, New Penderel House, 283-288 High Holborn, London WC1V 7HP, UK. Email: mike@haemnet.com

Kate Khair
Consultant Nurse
Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond St, London WC1N 3JH, UK.

Abstract

Aim: UK guidelines recommend regular assessment of joint status in children with haemophilia using a standardised tool performed by haemophilia physiotherapists. We surveyed UK physiotherapists working in haemophilia care regarding their current practice with respect to joint scoring.
Methods: A survey was posted on SurveyMonkey and all haemophilia physiotherapists practising in the UK were invited to respond. Responses were analysed and discussed at a roundtable meeting attended by invited physiotherapists and specialist haemophilia nurses.
Results: In all, responses were received from 29 of the estimated 37 physiotherapists in the UK who see haemophilia patients. Both the survey and subsequent discussion reflected agreement that joint scoring offers a valuable tool to clinicians, but that better ways of assessing joint health were needed. There was enthusiasm for combining joint scoring with systematic and validated patient-reported outcome measures.
Conclusion: Greater understanding is needed of the relationship between joint scores and measures of physical function and quality of life.

Acknowledgements

The authors wish to thank all the physiotherapists who responded to the survey and the professionals who attended a roundtable meeting to discuss the results: Jamie O’Hara, (patient), David Stevenson (East Kent), Anna Wells (Basingstoke), Alison Greg (St George’s Hospital, London), Jenna Reid (Edinburgh), Steph Taylor (Oxford), Anna South (Leeds), Vicky Vidler (Sheffield), Chris Harrington (Royal Free Hospital, London).
Both the survey and subsequent roundtable meeting were made possible by an unrestricted medical education grant provided to Haemnet by Pfizer Ltd. The sponsor had no input into the survey or this report, and did not attend the roundtable meeting.
Haemnet is the sponsor of the SO-FIT study.

Sample

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The Journal of Haemophilia Practice is published by Haemnet.

Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.