J Haem Pract 2014; 2(1):J Haem Pract 2015; 2(1): 9-11. doi: 10.17225/jhp00041

Authors: Adam Jones

Adam Jones
Senior Lecturer
Department of Pharmacy, Health & Wellbeing, University of Sunderland, Faculty of Applied Science, Sciences Complex, City Campus, University of Sunderland, Sunderland, Tyne & Wear, SR1 3SD, UK. Email:


The history of haemophilia care has been fraught with extreme successes and epic failures. The development of plasma-derived concentrates made prophylactic treatment and home care possible, but the unintended consequences were devastating for a generation and only abated with the emergence of recombinant products. Now with the arrival of longer-acting factor concentrates and the potential offered by gene therapy, further improvements in medical and social outcomes are possible. But these new treatment approaches raise challenging ethical and moral issues that society must be prepared to confront.


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The Journal of Haemophilia Practice is published by Haemnet.

Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.