J Haem Pract 2016; 3(1):24-32. doi: 10.17225/jhp00066

Authors: Trudi Little, Esben Strodl, Simon Brown, Tara Mooney

Trudi Little
Queensland University of Technology, Victoria Park Road, Kelvin Grove, Queensland, 4059, Australia.

Esben Strodl
School of Psychology and Counselling, Queensland University of Technology, Victoria Park Road, Kelvin Grove, Queensland, 4059, Australia. Email:

Simon Brown
Lady Cilento Children’s Hospital, 501 Stanley St, South Brisbane QLD 4101, Australia.

Tara Mooney
Queensland University of Technology, Victoria Park Road, Kelvin Grove, Queensland, 4059, Australia.


The experience of living in a non-metropolitan area and parenting a child with haemophilia is relatively unknown. Using Interpretive Phenomenological Analysis (IPA), the following study explored the experiences of seven parents, from which four themes emerged: ‘bearing the brunt of diagnosis’ captures the impact of the diagnosis; ‘if you can’t help me, who can?’ reveals experiences with the health system; ‘tackling the challenge of treatment’ encompasses difficulties in adhering to the treatment regime; ‘I need you to understand’ reflects desires for others support and understanding. These themes should be considered when developing support systems and interventions for parents living in non-metropolitan areas.


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