Northern Regional Bleeding Disorders Center at Munson Medical Center, 1105 Sixth Street, Traverse City, MI 49684. Email: Mwitkop@mhc.net
Center for Cancer and Blood Disorders, Children’s National Health System, 111 Michigan Avenue, NW, Washington DC, 20010.. Email: Cguelche@childrensnational.org
Northern Regional Bleeding Disorders Center at Munson Medical Center, 1105 Sixth Street, Traverse City, MI 49684. Email: Mhall4@mhc.net
Indiana Hemophilia & Thrombosis Treatment Center, 8326 Naab Road, Indianapolis, IN 46260.. Email: firstname.lastname@example.org
Introduction: As the focus on personalised treatment is refined, more products are brought to market and the life expectancy of persons with haemophilia increases, there will be an expanded need of experienced and expert healthcare providers to ensure optimal patient outcomes.
Aim: This survey describes the demographics, roles/responsibilities, practice patterns, educational opportunities/barriers and employment benefits of nurses and advanced practices providers (APPs), including advanced practice registered nurses (APRNs) and physician assistants (PAs) employed by haemophilia treatment centres (HTCs) across the United States.
Methods: This one-time convenience online survey was approved by the Munson Medical Center Institutional Review Board. A survey of this type had never been attempted in the HTC nursing community; therefore, there was no opportunity to utilise a previous tool. Data was analysed using statistical tools through SurveyMonkey.
Results: Gaps were identified in provider age distribution, research opportunities, and standardized educational opportunities for APPs. An aging but highly educated HTC nursing population is revealed: over 50% of respondents were over the age of 50; the majority held at least a baccalaureate degree and almost half had national board certification; most were experienced in healthcare but newer to the field of bleeding disorders.
Conclusion: Development of an APP fellowship program would standardise the care and treatment of those with bleeding and clotting disorders across the United States. This fellowship should include a didactic portion, advocacy within the community, mentorship with experienced APPs and regular webinar-based case studies to review current trends in care. This survey is a call to action to begin standardized education programs for the advanced practice role.
All authors contributed equally to the research design, research analysis and authorship of the manuscript.
Declaration of Interests
Michelle L. Witkop conducted the survey; she has served as a paid consultant to Aptevo, NovoNordisk, Pfizer, Inc, and NHF, and has served on advisory boards for Baxalta, Aptevo, Octapharma, NovoNordisk, and Pfizer, Inc. She has received research funding from Pfizer, Inc. and is on speakers’ bureaus for Aptevo, NovoNordisk, and Pfizer, Inc.
Christine Guelcher has served on advisory boards for Baxalta, Octapharma, NovoNordisk, Grifols, and Biogen. She is on speakers’ bureaus for SolutionSight and NovoNordisk.
Jennifer Maahs and Margaret Hall have no interests to declare.
The authors received no funding or writing assistance with this research/manuscript.
The Journal of Haemophilia Practice is published by Haemnet.
Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.