Citation
J Haem Pract 2017; 4(1). doi: 10.17225/jhp00102

Authors: JoAnn Nilson, Kathy Mulder, Candice L Schacter, Kristy Wittmeir, Richard Lomotey, Catherine M Arnold, Sarah Oosman

JoAnn Nilson
Saskatchewan Bleeding Disorders Program, Saskatoon, Saskatchewan, Canada. Email: Joann.Nilson@saskatoonhealthregion.ca

Kathy Mulder
Physiotherapy-Child Health Program, Children’s Hospital, Winnipeg, Manitoba, Canada.

Candice L Schacter
School of Physical Therapy, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

Kristy Wittmeir
Department of Physiotherapy, Health Sciences Centre Winnipeg Department of Pediatrics and Child Health, Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada.

Richard Lomotey
The Pennsylvania State University, Information Sciences and Technology, Monaca, PA, USA.

Catherine M Arnold
School of Physical Therapy, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

Sarah Oosman
School of Physical Therapy Researcher, Saskatchewan Population Health and Evaluation Research Unit (SPHERU), University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

Abstract

Background: Young men with mild haemophilia have unique challenges pertaining to bleed management. They may not always identify musculoskeletal injury requiring medical attention as they do not bleed frequently, potentially resulting in significant health consequences. In response to these challenges, a team of clinicians, researchers and young men with mild haemophilia developed a self-assessment pathway which was converted into a mobile app.
Aim: This study examined the influence of the mobile app, HIRT? (Hemophilia Injury Recognition Tool) on perceived injury self-management in young men with mild haemophilia in Canada.
Methods: We used a mixed methods design. The quantitative data, through a self-report questionnaire, evaluated perceived injury self-management strategies and participant confidence levels. Non-parametric Wilcoxon signed-rank test and McNemar chi-square test were used to determine association between perceived self-management strategies when using and not using the app, with significant levels set at p<0.05. Qualitative data was created using interpretive description and inductive content analysis of recorded and transcribed interviews.
Results: 12 young men, aged 18-35 years, participated. Perceived confidence levels significantly increased (p=0.004) with the use of the app. Five qualitative themes were identified: accessibility, credibility, the benefit of alarms, confidence and usefulness.
Conclusion: This study provides promising evidence to support the feasibility and use of HIRT? as an injury self-management tool for young men with mild haemophilia. Future research should prospectively investigate the effect of the app on injury self-management confidence.

Acknowledgements

Research grants were received from peer-reviewed research committees: CHS-Baxalta Inherited Bleeding Disorder Fellowship for Nurses and Allied Health Care Professionals through the Canadian Hemophilia Society, and Bayer Hemophilia Awards Program (BHAP), a global research awards program. Mitacs internship program grants were received for computer science support through the University of Saskatchewan (Mitacs Inspiring Innovation in Canada, http://www.mitacs.ca). Saskatoon Health Region, through Chronic Disease Management, has supported this research. McMaster University and Hamilton Bleeding Disorders Program assisted in recruiting participants. We would like to thank Saskatchewan and Manitoba Bleeding Disorders Programs and all the young men with mild haemophilia who have participated in this study.

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The Journal of Haemophilia Practice is published by Haemnet.

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