Citation
J Haem Pract 2017; 4(1). doi: 10.17225/jhp00103

Authors: Sandra Dodgson, Jenny Bryan, Cathy Harrison, Clare Ibbs, April Jones, Paul McLaughlin, Grainne O'Brien, Sharon Varney, Anne Wareing, Pamela Wick

Sandra Dodgson
Haemnet, London. Email: Sandra@haemnet.com

Jenny Bryan
Medical Writer, London. Email: jennylbryan@btinternet.com

Cathy Harrison
Haemophilia & Thrombosis Centre, Royal Hallamshire Hospital, Glossop Road, Sheffield S10 2JF.

Clare Ibbs
Arthur Bloom Haemophilia Centre, University Hospital of Wales, Heath Park, Cardiff CF14 4XW.

April Jones
Newcastle upon Tyne Hospitals NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP.

Paul McLaughlin
Katharine Dormandy Haemophilia Centre and Thrombosis Unit, Royal Free London NHS Foundation Trust, Pond Street, London NW3 2QG.

Grainne O'Brien
Haemophilia and Thrombosis Centre, Royal Infirmary of Edinburgh, Little France Crescent, Edinburgh EH16 4SA.

Sharon Varney
Space for Learning, www.spaceforlearning.com.

Anne Wareing
Haematology Unit , St George's University Hospitals NHS Foundation Trust, London SW17 0Q.

Pamela Wick
Haemophilia & Thrombosis Centre, Glasgow Royal Infirmary, 84 Castle Street, Glasgow G4 0SF.

Abstract

Members of the multi-disciplinary team involved in delivering haemophilia care face a range of significant clinical and service leadership challenges. These include the developing treatment landscape, the drive towards individualised care, an uneven age structure among haemophilia nurses and constrained budgets. Faced with such challenges, the ASPIRE programme has been established to encourage and support a new generation of haemophilia leaders who are committed to improving haemophilia care across the UK, and beyond. The programme is open to healthcare professional from multiple disciplines, and is designed to support the development of a leadership community comprising members of the haemophilia care team in a way that contrasts with hierarchical leadership and management courses more typically found in the NHS.

Acknowledgements

The ASPIRE programme was developed by Haemnet with funding from the Burdett Trust for Nursing.
The authors have advised no interests that might be perceived as posing a conflict or bias. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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The Journal of Haemophilia Practice is published by Haemnet.

Haemnet is a registered charity that brings together and gives a voice to haemophilia nurses, physiotherapists and allied health care professionals, providing forums for collaborative research, educational activities and support.